Registration Ends Soon! May 30, 2008

There are only 13 rooms left, so make sure you REGISTER NOW!

Registration ends on Tuesday, June 3, 2008 so don’t delay.  Click here to print the form and either mail it or fax it back to the IDF :http://www.primaryimmune.org/pubs/SCID_Conf_2008_registration.pdf

 

If you have not received email confirmation from me, Heather Smith, saying that I have received your registration, please let me know ASAP.  Email me at Heather@scidangelsforlife.com so I can make sure your registration was received successfully. 

See you at Wintergreen Resort in July!!!

Conference Dress Code May 27, 2008

There isn’t a dress code for the conference, however, I do recommend that you keep in mind that the meeting rooms are usually on the chilly side, so bring a sweater. 

1.  Friday evening is an outdoor barbecue

2.  Saturday’s dinner will be inside with putt putt golf and other outdoor activities to follow after dinner.

3.  You may want to bring a swim suit, walking shoes, golf clubs, tennis racket, bug spray and, sun tan lotion.

 

*Please remember this is a family event so no tank tops or cut off shorts.

Hurry and Register May 16, 2008

We’ve had a great response so far and I am happy to say that half of the rooms are already booked.  What that means for those of you who haven’t registerd, REGISTER NOW! Registration is on a first-come, first-severd basis and will be limited. 

Those registering by fax or mail click here:  http://www.primaryimmune.org/pubs/SCID_Conf_2008_registration.pdf

Credit card users click here: https://www.primaryimmune.org/youcanhelp/events_scidconf2008/eventform.asp

*Important reminder:  Anyone who registers online, PLEASE send me an email at Heather@scidangelsforlife.com notifying me that you’ve registered.  That way I can send you an email confirming your registration, after I’ve verified receipt with the IDF.  Thank you!

Online Registration Problem! May 14, 2008

ATTENTION ALL SCID CONFERENCE ATTENDEES:  we’ve had a problem with the online registration and have only received two registrations online.  Anyone who has registered online with a credit card between May 6th and May 14th is going to have to do so again.  The credit card information is being entered manually so you don’t have to worry about being charged twice…that WONT happen.  There was a bug in the program and even though you clicked “submit” on the form, it never went through and all the information has been lost. 

**In order to be certain this problem has been fixed, please send an email to Heather@scidangelsforlife.com after you have completed your registration, telling me you have registered and I will send you a letter confirming everything was successfully transmitted.

I’m sorry for any inconvenience this may cause you!

Hot Topics to be discussed May 13, 2008

Be sure to check out the outstanding list of speakers/presenters that will be at the conference! What an incredible opportunity to have top physicians come together in one location, to talk about SCID’s. 

Here are some of the topics that will be discussed:

1.  Newborn Screening Pilot Program for SCID

2.  In-utero Bone Marrrow Transplantation for SCID, past, present, future

3.  ADA SCID; Gene Therapy, present and future

4.  Immune defects leading to SCID and BMT for SCID

5.  Growth after BMT for SCID; X-SCID gene therapy, history and prospects

6.  Genetics, DNA mutations in SCID

7.  GI problems in post-BMT SCID children

8.  Chronic pulmonary disease with a focus on SCID

9.  Athabaskan SCID

10.Impact of SCID on the family, communicating with children about SCID, carrier testing, adolescent adjustment issues, and bullying in school

 

 

Airport Transportation May 9, 2008

For those of you who will be flying into Charlottesville, the airport closest to the conference, Wintergreen offers shuttle transportation to and from the airport and there is also taxi service.  Here are the prices I have been quoted:

$135 one way for 1 to 3 people

$45 per person, up to 8 people

There is also taxi service to and from Wintergreen.  Ariana Transport has handicap vans (with lifts) available upon request.  For reservations please call 434-872-0194 OR 434-987-6910.  The approximate charge from Charlottesville to Wintergreen Resort is $85 for 1 to 4 persons.  This company will also drive to other airports such as Richmond, Dulles, and Reagan, call for a quote.  Currently they are charging $2.75/mile.

Another option is a rental car.  Here is a list of the following rental companies that can be found on-site at the airport.  The drive from Charlottesville Airport to Wintergreen Resort is approximately 45 minutes.

Rental Cars

• Avis: (434) 973-6000
• Hertz: (434) 297-4288
• National: (434) 974-4664

 

 

 

Registration has begun May 8, 2008

Registration has begun and I want to thank all of you who have already registered.  It looks like this is going to be a packed event, so please register now! The scholarship deadline has ended, so hopefully anyone that needed one applied before the deadline.

I’ve added a few more names to the faculty list so be sure to check that out. 

If you haven’t taken a look at the tentative agenda you may want to do so.  This will give you an idea of what time you need to arrive on Friday and depart on Sunday.

Don’t forget to bring your item(s) for the “Going Green and Giving Back” silent auction.  All proceeds will go to the IDF – SCID Initiative, and then given back to the SCID Community.

Register NOW!!! May 6, 2008

Registration for ”SCID Conference 2008″ at Wintergreen Resort in Wintergreen, VA has started.  Please register now by clicking the down loadable registration form at: http://www.primaryimmune.org/pubs/SCID_Conf_2008_registration.pdf

OR credit card users can go to the link at:  https://www.primaryimmune.org/youcanhelp/events_scidconf2008/eventform.asp

Remember, the registration fee is $250 per room (each room will accommodate approximately 2 adults and 2 children).

The registration deadline is June 3, 2008 so REGISTER NOW! Space is limited and will be assigned on a first-come, first-served basis.

Registration May 5, 2008

I will be posting the link for the online registration form as soon as the IDF sends it to me.  Please check back frequently, as it is supposed to be up and running on May 6, 2008.