Conference Dress Code May 27, 2008

There isn’t a dress code for the conference, however, I do recommend that you keep in mind that the meeting rooms are usually on the chilly side, so bring a sweater. 

1.  Friday evening is an outdoor barbecue

2.  Saturday’s dinner will be inside with putt putt golf and other outdoor activities to follow after dinner.

3.  You may want to bring a swim suit, walking shoes, golf clubs, tennis racket, bug spray and, sun tan lotion.

 

*Please remember this is a family event so no tank tops or cut off shorts.

Hot Topics to be discussed May 13, 2008

Be sure to check out the outstanding list of speakers/presenters that will be at the conference! What an incredible opportunity to have top physicians come together in one location, to talk about SCID’s. 

Here are some of the topics that will be discussed:

1.  Newborn Screening Pilot Program for SCID

2.  In-utero Bone Marrrow Transplantation for SCID, past, present, future

3.  ADA SCID; Gene Therapy, present and future

4.  Immune defects leading to SCID and BMT for SCID

5.  Growth after BMT for SCID; X-SCID gene therapy, history and prospects

6.  Genetics, DNA mutations in SCID

7.  GI problems in post-BMT SCID children

8.  Chronic pulmonary disease with a focus on SCID

9.  Athabaskan SCID

10.Impact of SCID on the family, communicating with children about SCID, carrier testing, adolescent adjustment issues, and bullying in school

 

 

Conference Agenda April 30, 2008

People have been asking me what time they need to arrive at Wintergreen on Friday, July 25th and what the agenda is for the weekend.  This is just a tentative agenda and may change as we get closer to the conference, but for right now this is what we are planning on.

Friday, July 25, 2008

4:00p.m.              Registration

6:30p.m.             Dinner and Entertainment (campfire w/smores, music) 

7:30p.m.             Story of David Vetter by Carol Ann Demaret    

8:00p.m.             ”Getting to Know You” with Steve Bellamy

9-11:00p.m.       Cocktail hour (cash bar)

Saturday, July 26, 2008

7:45a.m.             Breakfast

8:15a.m.             Drop children off at children’s activities

8:30-11:45a.m.  Meetings

11:45a.m.           Pick up kids and bring them to lunch

Noon                   Lunch

12:30p.m.           Drop children off at the children’s activities

12:45-4:30p.m.  Meetings

4:30p.m.             Pick children up from the children’s activities

6:00p.m.             Dinner/”Going Green” Silent Auction.

7:00p.m.             SCID email listserv by Barb Ballard

8:00-10:00p.m.  Family Activities (glow in the dark putt putt golf, rock climbing, games).   

Sunday, July 27, 2008

7:45a.m.             Breakfast

8:15a.m.             Drop children off at the children’s activities

8:30-11:45a.m.  Meetings/closing ceremonies

11:45a.m.           Pick up children

Noon                  Lunch, conference adjourned