Conference Dress Code May 27, 2008

There isn’t a dress code for the conference, however, I do recommend that you keep in mind that the meeting rooms are usually on the chilly side, so bring a sweater. 

1.  Friday evening is an outdoor barbecue

2.  Saturday’s dinner will be inside with putt putt golf and other outdoor activities to follow after dinner.

3.  You may want to bring a swim suit, walking shoes, golf clubs, tennis racket, bug spray and, sun tan lotion.

 

*Please remember this is a family event so no tank tops or cut off shorts.

Hot Topics to be discussed May 13, 2008

Be sure to check out the outstanding list of speakers/presenters that will be at the conference! What an incredible opportunity to have top physicians come together in one location, to talk about SCID’s. 

Here are some of the topics that will be discussed:

1.  Newborn Screening Pilot Program for SCID

2.  In-utero Bone Marrrow Transplantation for SCID, past, present, future

3.  ADA SCID; Gene Therapy, present and future

4.  Immune defects leading to SCID and BMT for SCID

5.  Growth after BMT for SCID; X-SCID gene therapy, history and prospects

6.  Genetics, DNA mutations in SCID

7.  GI problems in post-BMT SCID children

8.  Chronic pulmonary disease with a focus on SCID

9.  Athabaskan SCID

10.Impact of SCID on the family, communicating with children about SCID, carrier testing, adolescent adjustment issues, and bullying in school

 

 

Registration has begun May 8, 2008

Registration has begun and I want to thank all of you who have already registered.  It looks like this is going to be a packed event, so please register now! The scholarship deadline has ended, so hopefully anyone that needed one applied before the deadline.

I’ve added a few more names to the faculty list so be sure to check that out. 

If you haven’t taken a look at the tentative agenda you may want to do so.  This will give you an idea of what time you need to arrive on Friday and depart on Sunday.

Don’t forget to bring your item(s) for the “Going Green and Giving Back” silent auction.  All proceeds will go to the IDF – SCID Initiative, and then given back to the SCID Community.