Registration is now officially over.  For those families that want to come but have not registered, you need to contact me immediately at Heather@scidangelsforlife.com and I will put you on a waiting list, but unless someone cancels, there will not be room for you.

We’ve had a wonderful turn out for registration and I am very excited about this event.  This SCID conference will be a wonderful place for families to meet, share life experiences, gather information, share information and for families to provide hope to one another.  That being said, I’m looking forward to seeing and meeting each and every one of you next month!

Spots are still available for next month’s conference.

Register Now!!! 

At: http://www.primaryimmune.org/pubs/SCID_Conf_2008_registration.pdf 

Fax your registration to Heather at (863) 647-9537

This is your last chance to register for the conference if you haven’t already.  I still have a few rooms left and will keep registration open until they are gone….so REGISTER NOW!

The online registration has been taken down so you will need to print the pdf form and fax it back to the IDF at 410-321-9165.  For the form, click here:  http://www.primaryimmune.org/pubs/SCID_Conf_2008_registration.pdf

If you have not received email confirmation from me, Heather Smith, saying that I have received your registration, please let me know ASAP.  Email me at Heather@scidangelsforlife.com so I can make sure your registration was received successfully. 

See you at Wintergreen Resort in July!!!

There are only 13 rooms left, so make sure you REGISTER NOW!

Registration ends on Tuesday, June 3, 2008 so don’t delay.  Click here to print the form and either mail it or fax it back to the IDF :http://www.primaryimmune.org/pubs/SCID_Conf_2008_registration.pdf

If you have not received email confirmation from me, Heather Smith, saying that I have received your registration, please let me know ASAP.  Email me at Heather@scidangelsforlife.com so I can make sure your registration was received successfully. 

See you at Wintergreen Resort in July!!!

We’ve had a great response so far and I am happy to say that half of the rooms are already booked.  What that means for those of you who haven’t registerd, REGISTER NOW! Registration is on a first-come, first-severd basis and will be limited. 

Those registering by fax or mail click here:  http://www.primaryimmune.org/pubs/SCID_Conf_2008_registration.pdf

Credit card users click here: https://www.primaryimmune.org/youcanhelp/events_scidconf2008/eventform.asp

*Important reminder:  Anyone who registers online, PLEASE send me an email at Heather@scidangelsforlife.com notifying me that you’ve registered.  That way I can send you an email confirming your registration, after I’ve verified receipt with the IDF.  Thank you!

ATTENTION ALL SCID CONFERENCE ATTENDEES:  we’ve had a problem with the online registration and have only received two registrations online.  Anyone who has registered online with a credit card between May 6th and May 14th is going to have to do so again.  The credit card information is being entered manually so you don’t have to worry about being charged twice…that WONT happen.  There was a bug in the program and even though you clicked “submit” on the form, it never went through and all the information has been lost. 

**In order to be certain this problem has been fixed, please send an email to Heather@scidangelsforlife.com after you have completed your registration, telling me you have registered and I will send you a letter confirming everything was successfully transmitted.

I’m sorry for any inconvenience this may cause you!

Registration for ”SCID Conference 2008″ at Wintergreen Resort in Wintergreen, VA has started.  Please register now by clicking the down loadable registration form at: http://www.primaryimmune.org/pubs/SCID_Conf_2008_registration.pdf

OR credit card users can go to the link at:  https://www.primaryimmune.org/youcanhelp/events_scidconf2008/eventform.asp

Remember, the registration fee is $250 per room (each room will accommodate approximately 2 adults and 2 children).

The registration deadline is June 3, 2008 so REGISTER NOW! Space is limited and will be assigned on a first-come, first-served basis.

I will be posting the link for the online registration form as soon as the IDF sends it to me.  Please check back frequently, as it is supposed to be up and running on May 6, 2008.

Going Green and Giving Back Silent Auction

You can “Go Green” and “Give Back” at the same time! “Go Green” by donating a used item to the “Going Green and Giving Back Silent Auction”. Then “Give Back” by bidding in the auction itself. I am pleased to announce this exciting event will be included as a SCID Conference activity. I want everyone to come prepared for this fun exchange by bringing at least one item to donate to the auction, as well as bringing a check book to pay for the wonderful items you win.

Every registrant will be asked to bring with them at least one item to donate to the auction. The items do not need to be new, that’s where the “Going Green” part comes in. You can donate items which are in good, clean working condition, but which are no longer used in your house. All items will be displayed in a silent auction where all registrants may place their bids. All money collected will go directly to The SCID Initiative. So now, not only can you clean out some of those unused items, you can make a difference for a cause which is important to all of us.

What to donate:

Are there any stipulations on what I can and cannot donate? The first stipulation is that it be something small enough to be carried home in a suitcase or airline carry-on bag. Since many of our families will be arriving by plane, we want to have items which can easily return home with them. Second, the item must be in like-new working condition, clean, and have all its original parts. Third, no clothing or personal items please, unless they are unworn, with original tags. Fourth, stuffed animals should only be donated if they are new, with original tags. Think about those items which you or your kids no longer use. Some suggestions include:

• Family Friendly DVD movies
• Books, especially children’s books which your children have outgrown or popular reading list books
• Children’s games, board games, toys, with all original parts and instructions
• Costume jewelry that’s been stuck at the bottom of your jewelry box because you just don’t like it anymore
• Scrapbooking supplies that you’ve grown tired of using
• Electronic game disks or cartridges for current game systems such as: GameBoy, Game Cube, Wii, PS2, PS3, or Xbox which your kids have either beaten or outgrown
• Small household accessories such as picture frames, vases, decorative accents, etc. that just don’t go with your current décor

So start your spring cleaning and start thinking about the “Going Green and Giving Back Silent Auction” and make your friends “Go Green” with envy when they see the wonderful items you’ve won!

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As we near the end of March, the logo contest is coming to an end.  This is your last chance to submit a drawing and possibly win $100.  The winner will be announced during the conference.  Check the “logo” category of the blog for further details.

Things are progressing with the conference.  I am currently working with Diana Gill at the IDF on registration.  The Immune Deficiency Foundation has been gracious enough to host online registration for this event.  Thank you IDF! Registration will begin on Tuesday, May 6th and will run for four weeks only.  Remember, space is limited and we will be accepting applications on a first-come, first-severe basis.